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 DIRECTORY/Health/Fitness/Diseases/Genetic Disorders/Personal Pages (12)
i0Alpha1 Antitrypsine Deficiency - http://home.att.net/~a1ad/intro.htm - One man's perspective and journey with A1AD and a list of links and other resources from the internet.
 
i0Amelka's Page - http://www.amelka.info.pl/ - Amelka was born in Warsaw, Poland with a complex of congenital anomalies. Photos, history and contact. [English/Polish]
 
i0Ashly's Skeletal Dysplasia - http://www.angelfire.com/or2/ashlysworldofwonders/about.html - A mom describes her daughters disorder which is thought to be a metabolic disease similar to mucopolysachharisdoses. Also links to other related sites.
 
i0Caleb's Courage - http://www.geocities.com/calebwaddell/ - A baby's fight with MPS I, Hurler Syndrome. Information on the disease and links to other children fighting disease.
 
i0Joy's Page - http://www.lebaronfamily.com - Personal account about a daughter having Opitc Nerve Hypoplasia, Septo-Optic Dysplasia and had either a Congenital stroke or has schizencephaly.
 
i0MCAD Angel - http://www.mcadangel.com - Dedicated to raising awareness of the genetic disorder known as MCAD deficiency and the importance of early detection.
 
i0Maddy's Page - http://members.aol.com/kymwig - The story of Madison Wigglesworth who has hurler syndrome. Includes photo album and links to informative sites.
 
i0Mowat-Wilson - http://www.mowatwilson.org - Discussion site for mowat-wilson syndrome. Includes a links page, photos, a community page and a discussion area.
 
i0Robert Kenneth Picklesimer - http://www.picklesimers.com/robert_kenneth.html - Born with Jeune Syndrome or Asphyxiating Thoracic Dystrophy in Louisville Kentucky. He underwent corrective surgery in San Antonio Texas, called the Titanium Rib Project.
 
i0Story of Robert Purkis - http://swpurkis.pwp.blueyonder.co.uk/index.html - A small boy's health problems, possibly Leigh's Syndrome, and how his parents have helped him improve his quality of life.
 
i0Taryn's World: About Switches - http://www.tarynsworld.org/taryn/switches.htm - Personal page for kids and parents about genetic disorders, especially mannosidosis.
 
i0XXXXY Syndrome - http://www.xxxxysyndrome.com - Information on this rare chromosomal abnormality.
 
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