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 DIRECTORY/Health/Fitness/Diseases/Genetic Disorders/Sanfilippo Syndrome (7)
i0Ben's Dream - http://www.bensdream.org - Information about a foundation dedicated to increasing awareness of Sanfilippo Syndrome and raising funds to support research aimed at finding a cure. Includes a newsletter.
 
i0Bennett Children's Foundation - http://www.claritystudio.com/helpachild/ - Founded by parents of three young children who suffer from Sanfilippo Syndrome, a degenerative genetic disorder that is usually fatal before the teens. Raising awareness of the condition and enlisting financial support.
 
i0Children's Medical Research Foundation - http://www.curekirby.org/ - Funds medical research to find a cure for Sanfilippo Syndrome and other neuro-genetic disorders. News and links to summaries of research that has been supported by the foundation.
 
i0Frankiepants - http://www.frankiepants.com - Personal site about a child with this disorder. Provides details about the condition.
 
i0MPS III - http://www.mpssociety.org/content/4039/MPS_III/ - Information, including the causes, different forms, the inheritance and how the disorder progresses.
 
i0Special Child: Disorder Zone Archives - Sanfilippo Syndrome - http://www.specialchild.com/archives/dz-034.html - Describes the disorder for the benefit of parents, lists characteristics of children with the disorder, and tells what to expect.
 
i0The Sanfilippo Children's Research Foundation - http://www.alifeforelisa.org/ - Canadian based charitable group founded by the parents of Elisa Linton.
 
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