International Rett Syndrome Association (IREA)
- http://www.rettsyndrome.org/
- The mission of the IRSA is: to support and encourage medical research to determine the cause and find a cure for Rett syndrome, to increase public awareness of Rett syndrome, and to provide informational and emotional support to families of children with Rett syndrome.
Rett Syndrome Association UK
- http://www.rettsyndrome.org.uk/
- National charity provides support to patients, their families and carers. Features details of the condition, research findings, and clinics, as well as FAQ and an events calendar.
Rett Syndrome Research Foundation
- http://www.rsrf.org
- Promotes biomedical research for the treatment of Rett Syndrome, often misdiagnosed as Autism and Hypotonia. Offers detailed information, links, studies, support groups, and information on the Rett Syndrome gene MECP2 recently discovered.