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 DIRECTORY/Health/Fitness/Diseases/Rare Disorders (121)
i0Cherubs - http://www.cherubs-cdh.org - A non-profit support group for the families and medical care providers of children and adults born with Congenital Diaphragmatic Hernia.
 
i0Contact a Family - http://www.cafamily.org.uk - Information about this organization as well as the CaF directory of specific conditions and rare disorders. Also details about the Rare Disorders Alliance - UK.
 
i0European Organisation for Rare Diseases - http://www.eurordis.org - Alliance of patient associations dedicated to improving the quality of life of all people living with rare diseases in Europe.
 
i0Fibrous Dysplasia Support Online - http://members.cox.net/fdsupport/index.html - For those seeking support and information concerning the rare bone diseases: fibrous dysplasia, McCune Albright Syndrome and Cherubism.
 
i0Human Growth Foundation - http://www.hgfound.org/ - Information about growth-related disorders through education, research, and advocacy. Member driven organization.
 
i0Information Centre for Rare Diseases and Orphan Drugs - http://www.raredis.org/modules/news/ - Offers an Internet portal. Includes news, forums, rare disease and orphan drug information and registration forms
 
i0Kindler Syndrome - http://digilander.libero.it/camdic/KINDLER.html - An article and case study of this rare disease. Includes links.
 
i0National Organization for Rare Disorders, Inc. - http://www.rarediseases.org/ - Information about NORD, its programs, special events and the variety of services offered. Includes a rare disease, organization and orphan drug database. Diseases are listed alphabetically for easy searching.
 
i0Office of Rare Diseases - http://rarediseases.info.nih.gov/ - Information on more than 6000 rare diseases, including current research, publications from scientific and medical journals, completed research, ongoing studies, and patient support groups.
 
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